Many years ago, when I was about fourteen and hit puberty I developed Idiopathic Adolescent Scoliosis https://www.sauk.org.uk/types-of-scoliosis/idiopathic-scoliosis.
Way back then there were no proactive mitigating treatments,
it was just allowed to develop and was monitored, if by the late part of the
pubescent growth period it looks like it may have life limiting effects, you
have surgery. Nowadays if it caught early it’s both monitored and mitigated. In
retrospect its ludicrous that I wasn’t braced early. Had I been, I wouldn’t
have had to undergo five major spinal operations in my life.
In order from March 1986, it started with an Anterior release,
followed a fortnight later by a long spinal fusion incorporating Harrington
rods. The anterior release part involves breaking the ribs on the deformed side
and off-setting them a little. You then spend a week in ICU having four hourly
doses of morphine, you are encouraged to drink, and when you can finally make
two litres in a day without vomiting and eat and hold down solid food you can
go back to a regular orthopaedic ward (we’ll ignore the particulars of the
specialist orthopaedic ward). Once back on the ward you are turned every two to
four hours in an arbitrary fashion, left side, right side, back, rinse repeat.
This goes on for just over week.
ICU I believe was around five days, though it may have been
six. The morphine doses mentioned above take care of the time in the main. The
following seven or eight days between anterior release and the main fusion, do
eventually involve you mobilising. However, nothing can prepare you for how
quickly the ligaments tendons and muscles in your legs shorten and how much
they complain when you are finally stood up and told to take your own weight.
Again, it’s a different world today, nowadays you’re back on
your feet asap, and if not, you receive in bed physio. In any event they
wouldn’t just man-handle you to a sitting position and ask you to stand. And if
they did, they would warn you that is likely to hurt and you may fall or may
not be able to get your feet flat to the floor… but I digress.
At around the fourteen day mark you go back to theatre for
your second operation. During this surgery your spinal bones are fused, your
disks are removed, and metal rods are installed to hold all the bits together.
Then you are back on ICU for five days or so. The second stint on ICU is
harder. The morphine is the same, but you’re acclimatised to it, so it doesn’t
have the same effects. Or put another way there’s a lot more pain.
Eventually, you go back to a ward and you go through much
the same process as before. Dressing changes, being turned, being mobilised,
and finally having your stapples removed (the is scarring is still something to
behold).
Around a week before you’re discharged, you are put in
plaster. The cast extends from your chin to your hips, just past your coccyx at
the rear and in a line from hip to hip at the front. The cast stays on for six
months. After wearing the cast for six months (it was changed after three
months), you wear a spinal brace that looks like a skin-coloured tailored
corset made of rigid plastic for three to four months.
After about three months, you start removing the corset at
night and sleep without it. At the same time I started to first re-build of me
from scratch. There was no follow up physio. I’m not kidding about that. You
literally go home, wear a plaster, wear a brace, get on with it. The rebuild
involved swimming. I remember phoning the Royal National Orthopaedic hospital
to ask if it would be okay to go swimming while still wearing the brace during
the day and being told by the consultants’ registrar that it sounded like a
good idea and couldn’t hurt. That was the entirety of my convalescent
physiotherapy advice.
Thank fuck I’m not an idiot. And thank fuck I’d spent years
being a swimmer, being active and being busy, because If I hadn’t been, I can’t
imagine the state I’d be in now.
I had worked out that I only had a couple of working disks
left and that I’d have to look after them. I also worked out that swimming was
without a doubt going to be the perfect route back to cardiovascular fitness,
back to having muscle and maybe being able to `embellish’ the scars so they
didn’t look so catastrophic.
Eventually I got back on a push bike, and some time after
that I started running. Eventually I was running five miles three times a week,
going to a running club, pounding a treadmill, walking, climbing, scuba diving.
All my own work.
Jump forward to 1996. I’ve broken the Harrington rods in a
at least two places between my shoulder blades, and all the metalwork needs to
be removed. Major surgery three, almost ten years today from the first one in
1996.
This is a long recovery, rebuild two… it’s more difficult
this time I’m older have less time to myself, and my now ex-wife is about as
understanding as a thing that doesn’t understand, doesn’t want to understand and
really wants to be the one at the centre of attention. I get mostly back to
where I was and I’m still relatively speaking young… still mostly invincible.
Jump forward 2001, something is wrong down in the lumbar, it
involves the serious potential of a new surgery. I avoid it, I cut back on
activities, things get better, but my fitness has suffered, I have to be a bit
more careful, but I am still a fairly a new dad, and life has moved on. I can
excuse myself not being quite so super fit..
Jump forward 2007, the thing that was going wrong in 2001 (a
herniated disk) has been plaguing me on and off for six years. I’ve had an
inverse table to hang upside down in, taken Pregabalin, had numerous but
interment three monthly cortisone injections direct into the nerve roots at L4/L5
(lumbar spine), and L5/S1 (Lumbar to coccyx). These are Xray guided injections
for obvious reasons. They do work, but degeneration is occurring, and much
later I find out I’ve done a classic British thing and compromised my life for
probably eight years longer than I should have, and that my surgeon should
probably have been a little more forceful, in explaining that procrastinating has
a price you pay, further down the line.
In the end the only thing for it is a `bi-lateral,
hemilaminectomy, foraminotomy and micro-discectomy L4/L5, and a
hemilaminectomy, foraminotomy L5/S1. These surgeries involve shaving bone from
the Foramen and the Lamina and clearing disk material from the Annulus which is
the hard outer part of a spinal disc. This is a major surgery performed by a
Neurosurgeon. The major recovery time is about six months, the initial recovery
time is about six weeks. I had been told to get it fused. I refused on the
basis of not wanting to be rigid from waist to neck.
Rebuild three. I’m single having divorced sometime ago, and
having split up with my most recent partner, now live independently. Recovery
is quicker, the surgery while deeply invasive and fraught with danger is modern
and clean, and all that bedrest crap from twenty years before is long gone. I
am mobilised the day after surgery, I was walking the length of the ward the
day after that, two flights of stairs with a physio the day after that.
Jump forward 2011. The L5/S1 disk had been left herniated
too long it’s squished back into the nerve canal and I’m fucked for want of a
better word. There is no alternative; in August 2011, L5/S1 are fused. It’s major surgery. Six weeks initial recovery, six months to fully fuse, there is
new metalwork.
The scar I first had in March 1996, which starts just below
my neck, now pretty much runs to the cleft between my buttocks. This is the
surgery I should have had in 2007. I feel a bit of an idiot. It’s the same
surgeon for 2011, as 2007… he told me so.
Rebuild four, this one is tough, the local pool is a shit
hole I can’t swim there, so I find a tiny but useable pool in Leadenhall street
under and office block and start swimming lunchtimes. Eventually, I’m in `not
too terrible shape for a forty something’, but I’m stiffer and achier and
more often.
Jump forward 2019. I’m repotting a big old Acer, I tweak
something very badly. I spend three months crippled. It’s believed but never
proven that I have probably just torn some adhesions or scar tissue in my mid-back,
and lumbar area. It’s a setback but doesn’t require a rebuild, just a lot of
care, a lot of anti-inflammatory medication. The pins and rods in the lumbar
region are not damaged or dislodged, but it was a very worrying time. My
fitness did suffer, but the local pool in Burnham-on-Sea is run by
ex-professional Tri-athletes, they are serious about fitness, and making the Sports
and Swim Academy about fitness first not leisure, it’s a perfect environment
for recovery. The people there aren’t just staff, they are friends.
Jump forward January 2021, I’ve dodged Covid, I’ve avoided
any injuries that may involve any kind of interaction with a hospital. And then
one Saturday in January, early morning while going out to fill the bird feeders
in our car park I step off a kerb, the left foot hits solid ground and is
planted, the right however, is on invisible black ice. My right foot slides backwards
as far as my leg can extend in a second.
I’ve tweaked my right lumbar somewhere and maybe my hip. I’m
not swimming anyway as we are in Lockdown V.3. and the pool isn’t open. My
cardiovascular fitness has been affected by that. Now added to that is the fact
that I can’t walk more than three hundred and seventy paces…. yes I counted
them. It has been six weeks of `laying-down’ sciatica. ‘Laying-down’ sciatica
is the worst kind, because you lay-down to sleep, so for six weeks I’ve been
getting maybe two or three hours uninterrupted sleep, while super-strong
painkillers lay me out. Then, unfortunately, you spend three to four hours
sleeping fitfully, tossing and turning and trying to find a neutral position. It
doesn’t last, and give it half an hour and the pain will float you back to
consciousness. In this state of pained consciousness, your primary concern
(other than the pain), is that in a few short hours you have to go to work, in
pain, in poor health, and in a terrible mood.
This is going to be re-build five. I haven’t been this unfit
since 2011. A part of me (masochistically) is looking forward to the process. I
know I can do it, I know it will be as different this time as the previous four
times. I know I’m 53 and nine months old, I know I’m not 21 anymore. Doesn’t
matter, I can get back on the horse, I can be fit again, I will walk the
Quantocks again. I can’t wait for lockdown to end so I can swim again. In much
the same way as I can’t wait for my first vaccine dose.
There are things in life, that you orbit perpetually. Mine
is a genetic timebomb that went off when I was around 14 years old. I wish it
wasn’t and hadn’t, but wishes are just thoughts even if they are said out loud.
The fact is it happened. I’m physically broken, I’ve been broken all my life. But
with age comes acceptance, wisdom and patience, and a certain grit that in
youth was bravado and without wisdom.
Today 07/2/2021, I manged to walk five time around our
cluster of houses, two hundred paces per lap, one thousand paces, this from
three hundred and seventy a week ago (in between then and now it’s varied up
and down dependent on who knows what). Today feels like day one of re-build
five. Watch this space.
No comments:
Post a Comment